A musician from prestonpans has raised the roof with donations of thousands of pounds for a charity close to his heart.
Raise the roof for rett.
The foundation is a not for profit organization created in honor of sarah katherine following her diagnosis of rett syndrome.
Colin gordon 51 has been busy raising funds for reverse rett which is dedicated to changing the lives of all those with the neurological condition rett syndrome.
Raise the roof for rett the suki foundation presents the 5th annual raise the roof for rett on friday october 28 2016 at haven.
The event benefits the suki foundation for rett syndrome and patients with rett syndrome at children s of alabama.
The suki foundation presents the 5th annual raise the roof for rett on friday october 28 2016 at haven.
Event participants will have personal online fundraising pages and are encouraged to promote the event via social media.
The suki foundation hosted the second annual raise the roof for rett event nov.
A musician from prestonpans has raised the roof with donations of thousands of pounds for a charity close to his heart.
The fifth annual raise the roof for rett event will be held friday oct.
You are cordially invited to the official launch party benefit raise the roof for rett.
The suki foundation has already raised 350 000 of its 500 000 goal and hopes to reach the goal this year.
Raise the roof for rett also includes an online fundraising program through swell fundraising.
Families of people with rett syndrome their friends and networks are the reason rett research is making such great progress.
Event participants will have personal online fundraising pages and are encouraged to promote the event via social media.
The suki foundation has already raised 350 000 of its 500 000 goal and hopes to reach the goal this year.
The event will feature live music and a dinner buffet as well as silent and live.
Over the past few years many parents of children and adults with rett have called on their friends to join them in a local event such as the great manchester run and made it into a team challenge.
Raise the roof for rett.
Colin gordon 51 has been busy raising funds for reverse rett which is dedicated to changing the lives of all those with the neurological condition rett syndrome.
The foundation is a not for profit organization created in honor of sarah katherine following her diagnosis of rett syndrome.
28 from 6 10 p m.
Raise the roof for rett also includes an online fundraising program through swell fundraising.